Searchable abstracts of presentations at key conferences in endocrinology

ea0041gp159 | Pituitary - Clinical (1) | ECE2016

The partner perspective of the impact of pituitary disease: results from a focus group study

Andela Cornelie , Tiemensma Jitske , Kaptein Adrian , Scharloo Margreet , Pereira Alberto , Kamminga Noelle , Biermasz Nienke

Background: Patients with pituitary disease demonstrated Quality of Life (QoL) impairment. From other chronic diseases it is known that partners of patients also report impairments in QoL. Furthermore, it is observed that well-being of patients is associated with the well-being of their partners. To date, no data are available on the well-being of partners of patients with pituitary disease. Therefore, the aim of the present study was to explore well-being of partners of patie...

ea0037ep749 | Pituitary: clinical | ECE2015

The development and validation of a new burden and needs assessment questionnaire for patients with pituitary diseases: the BNQ-pituitary

Andela Cornelie , Scharloo Margreet , Ramondt Steven , Tiemensma Jitske , Kaptein Ad , Pereira Alberto , Kamminga Noelle , Biermasz Nienke

Background: An increasing number of studies assess quality of life (QoL) in patients with pituitary diseases. At present, available disease-specific QoL questionnaires do not completely cover the patient perspective of QoL. Furthermore, there are no disease-specific questionnaires available which inventories patientÂ’s needs for help for impairments in QoL.Objective: To develop and validate a disease-specific QoL questionnaire for patients with pitui...